Susan Fishbein:
CLASS OF 1967
Germantown High SchoolClass of 1967
Philadelphia, PA
Susan's Story
Life
Hi Guys!
Marc Fishbein, who I met in March, 1967, and I have been married since June 12, 1971. I have something called Late Onset Tay-Sachs disease. I used to run the LOTSF myself. The first 9 years, Marc was the President. The final year we merged with NTSAD, of Boston.
I've been on a drug trial since August, 2001. The first 3 months I lost 30 pounds. The next 3 months - I lost another 10.
We were going to the University Hospital in Cleveland every 3-4 months. I ...Expand for more
gained 30 pounds back. I do chair dancing 3-4 times a week.
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I NOW LIVE IN A NURSING HOME & HAVEN'T SEEN MARC FOR 4 YEARS MY SON IS COMING IN TODAYFROM BOSTON WITH HIS YEAR OLD DAUGHTER.. MY DAUGHTER IS 38 MY SON IS 34. I HAVE 3 GRANDCHILDREN - 9, 5, & 17 MONTHS.
MY DAUFHTER, BOBBI, LIVES 5 MINJUGTS AWAY.
SUSAN
THE GRANDKIDS ARE NOW 3, 7, AND 11
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